Haemophilia Scotland

Dan Hewins Carpentry & Joinery is proud to support Haemophilia Scotland.

      

Haemophilia Scotland is a registered charity (No. SC044298) based in Scotland for people who have haemophilia, von Willebrands and other bleeding disorders. We are an organisation for anyone who has these blood-related conditions so we can talk to each other; and we provides a united representative voice when speaking with the medical profession, with government, with the rest of Scottish society, and when connecting with people like us throughout the world.

Our Vision

Our Vision is of Scotland being a place where people with haemophilia, von Willebrands and other bleeding disorders, along with their families and carers, are fully supported to live healthy, happy lives according to their individual needs and circumstances. It is a vision of people successfully self-managing their conditions with high quality, trusted and proportionate medical support so they can maximise their life chances.

Our Mission

Our Mission is to support, inform and advocate on behalf of all people in Scotland with haemophilia, von Willebrands and other bleeding disorders. Our Mission involves securing the most effective services and safe treatments by bringing together patients, and working with health service providers, suppliers and policy-makers so that people’s quality of life is as good as it can be.

Haemophilia is an inherited condition that affects the blood's ability to clot.

Normally, when you cut yourself substances in the blood known as clotting factors combine with blood cells called platelets to make the blood sticky. This makes the bleeding stop eventually.

However, in haemophilia there are not as many clotting factors as there should be in the blood. This means someone with the condition will bleed for longer than usual.

The condition is passed to a child by one or both of their parents.

How it affects you

The symptoms of haemophilia can be mild to severe depending on the level of clotting factors you have. Most cases are classified as severe.

People with severe haemophilia often experience internal bleeding. This usually occurs around the joints and muscles, causing pain and stiffness. It can also lead to joint damage over time.

Types of haemophilia

The two most common types of haemophilia are haemophilia A and haemophilia B, although haemophilia A accounts for the majority of cases.

Both types have the same symptoms, but they are caused by problems with different clotting factors and have slightly different treatments.

There is also a rarer form of haemophilia called acquired haemophilia. This is not an inherited condition but is caused by the immune system (the body's natural defence against infection and illness) attacking the clotting factors in the blood.

Who is affected?

There are about 6,000 people with haemophilia in the UK. Most of these are males because of the way the condition is inherited.

Worldwide, it is estimated that one boy in every 5,000 will be born with haemophilia A and one boy in every 30,000 will be born with haemophilia B.

However, females who carry the haemophilia gene may also experience some bleeding problems

Treating haemophilia

There is no cure for haemophilia. However, with treatment a person with the condition can usually enjoy a good quality of life.

In recent decades genetically engineered clotting factor medications have been developed to prevent and treat prolonged bleeding.

These medications are given as an injection, the timing of which depends on how severe the condition is. Injections are usually only given in milder cases in response to prolonged bleeding, whereas more severe cases are treated with regular injections to prevent bleeding.

Donate                                         

The simplest way to donate is by text.

To donate £3 text FACTOR to 70660

You can change the amount your text donated by adding a new amount.  So if you’d like to donate £30 you need to text FACTOR £30 to 70660 and if you’d like to donate £50 you need to text FACTOR £50.

If you’d prefer to donate by post then please make cheques payable to “Haemophilia Scotland” and send them to:

Haemophilia Scotland                                                                           

4th Floor, Hayweight House
23 Lauriston Street
Edinburgh
EH3 9DQ

Thank you for your support.  Every penny makes a huge difference to the amount of support, information and advocacy we can provide in Scotland.

Dan Farthing – Senior Executive Officer